This blog is written for the soul purpose for people who have Huntington’s Disease themselves and want to read more about it, for those who have been affected by Huntington’s Disease or for people who haven’t and want to know more about it.
I too, have been affected by HD. My name is Paula Martin, I’m a writer, and I’m 26 years old and my dad has HD, my grandpa and my aunt also died from it as well. Now, my sister and I have a chance of getting it, too. We have a fifty-fifty chance of getting it. There is no cure, but there are good treatments out there and my dad is finally in a nursing home getting all the care he needs. My mom doesn’t have HD, but she has been a loving and completely amazing caretaker for my dad. She stops by to see him everyday. Amazing huh? I wish I could do that, I still have a hard time seeing him, but I love him so much!
I am writing this blog not only for me, and my sister, who is 27 years old and is a teacher, but also for my dad and for anyone else who is going through this. My dad is so strong and he’s been battling this disease since I was a little kid, so I had to grow up with it. It was scary! I watched slowly for years all throughout junior high and high school watching him starting to die. I couldn’t do anything to help him so I did the best I could, but I would sit in my room at night, tears rolling down my face wanting something better for him for all of us as a family. It not only messed me up, but it gave me depression and anxiety. Instead of saying how I felt about all of this, I kept it to myself so I became very shy.
I just want you to know that the one thing that I will be discussing throughout my entire blog is that HD did have a very negative aspect of my life. It really brought me down, I still fight anxiety and depression every day. So, I get it I understand how you all feel about this disease. It sucks it really does! It takes a person’s whole life away until there’s nothing left. However, there is hope! You can get it out of the darkness! I know it may not seem possible at times, but its true. I am doing it right now! All you need is hope, faith, support, love and to stay positive. I found my way out of the darkness and back into the light. Now, I see this disease in a better light and I want to share that with you.
Feel free to look around my blog, find out more about HD, tips on how to deal with it, some inspirational quotes that I may post up from time to time.
I write this to advocate for those like my dad who don’t always have a voice, to tell my story and maybe try to connect with as many people as possible who are going through this!
Just know there is hope! Things will get better! There will be a cure someday!
On this blog too, feel free to tell me what types of things you’d like to see on this blog and I’ll try it out. Just let me know!
Also, if you want, I have my Facebook page right here if you want to connect with me or on Pinterest.
Here are the links: